Our Stories

When I first experienced the attacks that I now know to be NEAD (or as I prefer to call them, dissociative seizures) I thought I was going mad. After I was told that it wasn't epilepsy and that it was all in my head, an internal struggle began where I even doubted myself- was I putting them on? Even whilst ...
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I was diagnosed in Feb 2014 with Somitisation Disorder and Non Epileptic Attack Disorder. This became apparent when I started with severe lock down symptoms where my neck would spasm and my whole body would stop working and the ultimate attack was in August 2013 when I had such a bad attack, I lost the use of my whole left side ...
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Basically, for 16 months my son kept passing out and having what I thought were epileptic seizures. An EEG ruled out epilepsy. We struggled for such a long time; we couldn't leave him on his own as we were so scared of when the next one would be. I managed to video one of the seizures and showed it to ...
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I was first diagnosed with epilepsy thirty years ago, although it is now believed I have had this condition most of my life. I am now seventy. There have always been times when I went into a dream world, or had blank spots when I missed information. Life was full of misunderstandings. School was difficult, but I later sustained a rewarding ...
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I am 43. I got told in November 2014 that I had NEAD. I was told I had epilepsy 20 years ago. I was put on lamatragine,which they kept upping until I was taking 400 grams a day. Then in July 2015, they decided to do an EEG and it came back as no electrical seizures. They then sent me to Addenbrookes ...
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