Information about non epileptic seizures and Non Epileptic Attack Disorder.

Tag: non epileptic seizures

Calling Health Professionals With an Interest in Non Epileptic Seizures

By on 6 July 2018 in News
Calling Health Professionals With an Interest in Non Epileptic Seizures

Following on from the success of the ‘In Our Words’ book which features the stories of people diagnosed with non epileptic seizures, we have been asked to take part in a project for a follow up book. The new book will feature the personal experiences of health professionals from all disciplines around the world who […]

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In Our Words: Personal Accounts of Living with Non Epileptic Seizures

By on 22 June 2018 in General
In Our Words: Personal Accounts of Living with Non Epileptic Seizures

Some time ago, we asked our members to take part in a project  compiling the stories of people who live with non epileptic seizures. Lots of people contributed and the result is this excellent book. FND Action was invited to write one of the forewords. Hopefully, this will become a ‘must read’ not just for […]

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FND Awareness Day UK

By on 7 March 2018 in General
FND Awareness Day UK

This year we have partnered up with other UK charities and groups (see details below) to have a national day of raising awareness of Functional Neurological Disorders (FND), including Non Epileptic Attack Disorder (NEAD). Our theme for Awareness Day this year is: #Voices4FND We are asking for people to get involved by taking a short […]

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Documentary about NEAD

By on 4 November 2017 in News

Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). This documentary is the vision of Clea Martin Vargas who decided to create it after her friend was diagnosed with NEAD. Funding is now required for post production costs. You can find out […]

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Get Involved: Research into NEAD

By on 23 August 2017 in General
Get Involved: Research into NEAD

Research is so important as it leads to a better understanding of the condition and hopefully to better and more effective treatments. Ongoing research projects in which you may like to participate include one which assesses how different self-perceptions (self-compassion, gratitude, perfectionism) are related to how individuals with epilepsy and non-epileptic attack disorder cope with their […]

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Grounding Techniques (Updated)

By on 17 April 2017 in General
Grounding Techniques (Updated)

When a seizure is about to happen, you go into what is known as a dissociative state. You may feel as if you are detached from your surroundings or as if the room is moving around, or just get a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura’. […]

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Research Project From University of Sheffield

By on 29 March 2017 in News

We have been asked to take part in a new research project. Study title The Effects of Repetitive Thoughts and Feelings in People with Chronic Seizure Disorders Institution The University of Sheffield About the study The project aims to explore two main areas: 1.    People who suffer seizures often worry about these and have […]

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Caring for the Carers

By on 4 May 2016 in General
Caring for the Carers

For most long-term health conditions, such as NEAD, the focus is on the person who is suffering as is only right. However, for each sufferer, there is at least one person who is also badly affected and that is their carer/s. If you are a carer for someone with NEAD, you may find yourself going […]

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Be Kind to Yourself: Dealing with Down Days

By on 25 January 2016 in General
Be Kind to Yourself: Dealing with Down Days

Having a long term health condition like NEAD is tough. You can have days when you feel well and able to face whatever the day brings and other days where you don’t even want to get out of bed. On the bad days, always treat yourself with kindness. Keep talking Often, we may feel like […]

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Initial Findings From Arizona State University Research

By on 3 January 2016 in News

Sometime ago, we were asked to take part in research being conducted at Arizona State University into how emotions affect the brain, particularly in regard to non epileptic seizures. The research project is ongoing but some initial findings have been sent out in a letter to participants which are as follows: What are “non-epileptic seizures”? […]

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