Information about non epileptic seizures and Non Epileptic Attack Disorder.

Tag: NEAD

New Research Project

By on 9 November 2015 in News

We have been asked to take part in a research project which is being conducted by the Royal Hallamshire Hospital in Sheffield by a PhD student of Prof Markus Reuber. The project will run until November 2016. Read the following and if you are interested, click on the link to find out how to register: […]

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Standing up for NEAD

By on 29 October 2015 in News

A man from Harrogate, Yorkshire, bravely spoke to his local radio station, Stray FM, about NEAD and about the circumstances that led to him developing it. 24-year-old James DeSantos is planning on making a documentary about NEAD to raise awareness of the condition. To hear the full interview, click here. *Trigger warning*: Some people may find some […]

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What is EMDR?

By on 29 October 2015 in General

EMDR stands for ‘Eye Movement Desensitisation and Reprocessing’. It’s a form of integrative therapy that is proving effective for people who have suffered from a traumatic experience such as abuse, a natural disaster, a bad accident etc. Some people with NEAD are being offered it as an alternative to cognitive behavioural therapy. So, how does […]

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Coping With Fatigue

By on 5 October 2015 in General
Coping With Fatigue

Anyone who has a long term chronic health condition will often tell you that it is not the pain or the medication side effects which are the hardest things to deal with but the extreme fatigue. The same is true for people with NEAD. Trying to explain fatigue to other people can be hard. It’s not […]

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Neurology Third Sector Engagement Day

By on 18 September 2015 in News

Our group was invited to attend this event which was held in Stirling in Scotland. Our representative, Sue Downie, tells us how it went. The day was aimed at Third Sector representatives working to improve services and outcomes for people with lived experience of neurological conditions. Professor Craig White (Divisional Clinical Lead, Healthcare Quality and […]

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Relationships and NEAD

By on 9 September 2015 in General
Relationships and NEAD

John Donne wrote that ‘no man is an island’. Each of us needs to love and be loved. In fairytales, true love overcomes all but in real life things tend to be a lot different. When one partner develops a chronic illness such as NEAD, it can throw the relationship dynamic completely out of kilter […]

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Six Tips for Dealing with Doctors

By on 24 August 2015 in General
Six Tips for Dealing with Doctors

It can take a long time and a lot of tests to finally get the diagnosis of NEAD and even then there can still be problems coping with the attitudes and lack of knowledge of health professionals. Here are six tips to help you make the most of your appointments. 1. Be prepared. Whatever stage […]

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Minimum requirements for the diagnosis of NEAD

By on 21 July 2015 in General

For many people, getting the right diagnosis can take some time. It can be difficult for patients to understand why this should be. Follow the link for an academic article by the International League Against Epilepsy Nonepileptic Seizures Task Force laying out the diagnostic criteria used by neurologists and explaining why a video EEG is so […]

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What do you say when people say…

By on 3 July 2015 in General
What do you say when people say…

Getting the diagnosis of NEAD is frustrating enough but trying to explain it to people and then dealing with their reactions can really push your blood pressure up! Most people are genuinely trying to help and be supportive, so take a deep breath and try some of the responses below. “It’s all in your mind” […]

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Jacob’s Story

By on 1 July 2015 in Stories

When I first experienced the attacks that I now know to be NEAD (or as I prefer to call them, dissociative seizures) I thought I was going mad. After I was told that it wasn’t epilepsy and that it was all in my head, an internal struggle began where I even doubted myself- was I […]

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