Information about non epileptic seizures and Non Epileptic Attack Disorder.

Six Tips for Dealing with Doctors

By on 24 August 2015 in General

It can take a long time and a lot of tests to finally get the diagnosis of NEAD and even then there can still be problems coping with the attitudes and lack of knowledge of health professionals. Here are six tips to help you make the most of your appointments.

1. Be prepared. Whatever stage you are at in your journey with NEAD, make sure you go fully prepared to appointments. Keep a diary of any symptoms you have been having including when they occured. If possible, take along video of your seizures. Make a list of any questions you have and tick them off as you talk through them with your doctor so you don’t forget anything.

2. Be organised. Have a folder with all your details in it including a list of any medications you are on, contact telephone numbers and other useful information. Print out the information sheet from our website about what to do if you have a seizure and have that as the first page in your folder. Keep the folder somewhere handy so you can just grab it and go and make sure family/friends know where it is also.You may like to consider wearing a medic alert bracelet or similar so that ambulance crews etc know you have NEAD.

3. Be kind. Remember doctors are people too! It can be frustrating to have to deal with a doctor who knows nothing about the condition but if they are trying to help you then do everything you can to help them. Most GPs will have little or no experience of people with NEAD but most will be willing to learn about it and fight your corner for you.

4. Be helpful.Give them links to the websites and print off any information that you think is particularly relevant to you and take it to the appointment. Have a list of your medications ready. If you have any ideas about things that may help you, then tell them to the doctor. You are the expert about your own body, so make sure you tell the doctor everything that is going on, even if you are embarrassed.

5. Be ready to stand up for yourself. Sadly, there are always some health professionals who are dismissive or even downright rude. It can be very hard to stand up for yourself when you are recovering from a seizure in a busy A&E department so make sure you take your folder with all your information in it and, preferably, a relative or friend who understands your condition thoroughly. Be polite but firm if you feel that a health professional is being dismissive and if they are rude, then do please report them.

6. Be a NEAD expert. Learn everything you can about your condition, especially how it affects you personally. Take every opportunity you can to raise awareness amongst friends and family and more particularly amongst the health professionals you come across. Download the awareness poster from the website and take it in to your GP, your dentist, your physiotherapist, your midwife …any health professional that you see. The more people we talk to about NEAD, the more our condition will be understood.

Tags: ,

Subscribe

If you enjoyed this article, subscribe now to receive more just like it.

Comments are closed.

Top