Information about non epileptic seizures and Non Epileptic Attack Disorder.

General

What is NEAD like? One person’s view.

By on 18 November 2015 in General

One of the members of our Facebook group posted a great description of how NEAD makes her feel, so we decided to share it here. She was diagnosed in September and at first really struggled but now she is starting to come to terms with having to cope with the condition. This is what she wrote: […]

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What is EMDR?

By on 29 October 2015 in General

EMDR stands for ‘Eye Movement Desensitisation and Reprocessing’. It’s a form of integrative therapy that is proving effective for people who have suffered from a traumatic experience such as abuse, a natural disaster, a bad accident etc. Some people with NEAD are being offered it as an alternative to cognitive behavioural therapy. So, how does […]

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Coping With Fatigue

By on 5 October 2015 in General
Coping With Fatigue

Anyone who has a long term chronic health condition will often tell you that it is not the pain or the medication side effects which are the hardest things to deal with but the extreme fatigue. The same is true for people with NEAD. Trying to explain fatigue to other people can be hard. It’s not […]

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Relationships and NEAD

By on 9 September 2015 in General
Relationships and NEAD

John Donne wrote that ‘no man is an island’. Each of us needs to love and be loved. In fairytales, true love overcomes all but in real life things tend to be a lot different. When one partner develops a chronic illness such as NEAD, it can throw the relationship dynamic completely out of kilter […]

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Six Tips for Dealing with Doctors

By on 24 August 2015 in General
Six Tips for Dealing with Doctors

It can take a long time and a lot of tests to finally get the diagnosis of NEAD and even then there can still be problems coping with the attitudes and lack of knowledge of health professionals. Here are six tips to help you make the most of your appointments. 1. Be prepared. Whatever stage […]

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Minimum requirements for the diagnosis of NEAD

By on 21 July 2015 in General

For many people, getting the right diagnosis can take some time. It can be difficult for patients to understand why this should be. Follow the link for an academic article by the International League Against Epilepsy Nonepileptic Seizures Task Force laying out the diagnostic criteria used by neurologists and explaining why a video EEG is so […]

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What do you say when people say…

By on 3 July 2015 in General
What do you say when people say…

Getting the diagnosis of NEAD is frustrating enough but trying to explain it to people and then dealing with their reactions can really push your blood pressure up! Most people are genuinely trying to help and be supportive, so take a deep breath and try some of the responses below. “It’s all in your mind” […]

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Cultivating Resilience in NEAD

By on 5 June 2015 in General
Cultivating Resilience in NEAD

We all of us know people who seem able to cope with whatever life throws at them; we see stories of soldiers losing limbs and then going on to walk to the North Pole, or run a marathon. Then there are people like Stephen Sutton, diagnosed with bowel cancer at the age of 15, who […]

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Stress in NEAD: What is it and why do we feel it?

By on 20 May 2015 in General
Stress in NEAD: What is it and why do we feel it?

Stress is one of those words that get thrown around very casually. We talk about being ‘stressed’ when faced with a choice of which dress to buy for an important event or when we can’t find the charger for our mobile phone. So when a diagnosis of NEAD is given and the person is told […]

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Expert Patients Programme in England

By on 15 May 2015 in General

If you live in England, you may find this NHS initiative useful for helping you to cope with NEAD. The Expert Patients Programme (EPP) is a self-management programme for people living with a chronic (long-term) condition. Most people diagnosed with NEAD find that their GP knows little or nothing about their condition. This programme supports people […]

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