Information about non epileptic seizures and Non Epileptic Attack Disorder.

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Here you will find items of interest relating to Non Epileptic Attack Disorder. Feel free to contact us if you have come across an item elsewhere on the internet that you think should be highlighted here.

Grounding Techniques (Updated)

By on 17 April 2017 in General
Grounding Techniques (Updated)

When a seizure is about to happen, you go into what is known as a dissociative state. You may feel as if you are detached from your surroundings or as if the room is moving around, or just get a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura’. […]

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Preparing For Your Neurology Appointment

By on 13 October 2016 in General
Preparing For Your Neurology Appointment

One of our Facebook group members came up with a great checklist for getting the most out of your neurology appointment. Thanks Nicole! 1) Write a description of your attacks in advance with as much detail as possible about any auras, what goes on during them, what you experience and what happens post seizure and […]

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Pregnancy and NEAD

By on 10 September 2016 in General
Pregnancy and NEAD

Deciding to have a baby is a key moment in any person’s life. When you have been diagnosed with NEAD, it is important that you prepare carefully to make sure that your pregnancy and delivery is as safe as possible. Ideally, discuss with your doctor what, if any, special preparations you need to make before […]

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Caring for the Carers

By on 4 May 2016 in General
Caring for the Carers

For most long-term health conditions, such as NEAD, the focus is on the person who is suffering as is only right. However, for each sufferer, there is at least one person who is also badly affected and that is their carer/s. If you are a carer for someone with NEAD, you may find yourself going […]

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Be Kind to Yourself: Dealing with Down Days

By on 25 January 2016 in General
Be Kind to Yourself: Dealing with Down Days

Having a long term health condition like NEAD is tough. You can have days when you feel well and able to face whatever the day brings and other days where you don’t even want to get out of bed. On the bad days, always treat yourself with kindness. Keep talking Often, we may feel like […]

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Mental Health Services and NEAD

By on 6 January 2016 in General
Mental Health Services and NEAD

The currently accepted best treatment for NEAD is cognitive behavioural therapy (CBT). However, accessing treatment can be a very hit and miss affair, depending on where you live. Funding has been cut to the bone for mental health services which means ridiculous things happening, such as one of our members being told that the therapist […]

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Christmas and NEAD

By on 11 December 2015 in General
Christmas and NEAD

At this time of year, we are bombarded with adverts for the ‘perfect’ Christmas. Families are shown happily gathered at tables groaning with food. Children are always delighted with the gifts they have been given. Homes are decorated with style and taste. Of course, the reality is totally different; there are tears and tantrums, half […]

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What is NEAD like? One person’s view.

By on 18 November 2015 in General

One of the members of our Facebook group posted a great description of how NEAD makes her feel, so we decided to share it here. She was diagnosed in September and at first really struggled but now she is starting to come to terms with having to cope with the condition. This is what she wrote: […]

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What is EMDR?

By on 29 October 2015 in General

EMDR stands for ‘Eye Movement Desensitisation and Reprocessing’. It’s a form of integrative therapy that is proving effective for people who have suffered from a traumatic experience such as abuse, a natural disaster, a bad accident etc. Some people with NEAD are being offered it as an alternative to cognitive behavioural therapy. So, how does […]

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Coping With Fatigue

By on 5 October 2015 in General
Coping With Fatigue

Anyone who has a long term chronic health condition will often tell you that it is not the pain or the medication side effects which are the hardest things to deal with but the extreme fatigue. The same is true for people with NEAD. Trying to explain fatigue to other people can be hard. It’s not […]

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