Information about non epileptic seizures and Non Epileptic Attack Disorder.

Blog

Here you will find items of interest relating to Non Epileptic Attack Disorder. Feel free to contact us if you have come across an item elsewhere on the internet that you think should be highlighted here.

In Our Words: Personal Accounts of Living with Non Epileptic Seizures

By on 22 June 2018 in General
In Our Words: Personal Accounts of Living with Non Epileptic Seizures

Some time ago, we asked our members to take part in a project  compiling the stories of people who live with non epileptic seizures. Lots of people contributed and the result is this excellent book. FND Action was invited to write one of the forewords. Hopefully, this will become a ‘must read’ not just for […]

Continue Reading »

FND Awareness Day UK

By on 7 March 2018 in General
FND Awareness Day UK

This year we have partnered up with other UK charities and groups (see details below) to have a national day of raising awareness of Functional Neurological Disorders (FND), including Non Epileptic Attack Disorder (NEAD). Our theme for Awareness Day this year is: #Voices4FND We are asking for people to get involved by taking a short […]

Continue Reading »

Get Involved: Research into NEAD

By on 23 August 2017 in General
Get Involved: Research into NEAD

Research is so important as it leads to a better understanding of the condition and hopefully to better and more effective treatments. Ongoing research projects in which you may like to participate include one which assesses how different self-perceptions (self-compassion, gratitude, perfectionism) are related to how individuals with epilepsy and non-epileptic attack disorder cope with their […]

Continue Reading »

Grounding Techniques (Updated)

By on 17 April 2017 in General
Grounding Techniques (Updated)

When a seizure is about to happen, you go into what is known as a dissociative state. You may feel as if you are detached from your surroundings or as if the room is moving around, or just get a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura’. […]

Continue Reading »

Preparing For Your Neurology Appointment

By on 13 October 2016 in General
Preparing For Your Neurology Appointment

One of our Facebook group members came up with a great checklist for getting the most out of your neurology appointment. Thanks Nicole! 1) Write a description of your attacks in advance with as much detail as possible about any auras, what goes on during them, what you experience and what happens post seizure and […]

Continue Reading »

Pregnancy and NEAD

By on 10 September 2016 in General
Pregnancy and NEAD

Deciding to have a baby is a key moment in any person’s life. When you have been diagnosed with NEAD, it is important that you prepare carefully to make sure that your pregnancy and delivery is as safe as possible. Ideally, discuss with your doctor what, if any, special preparations you need to make before […]

Continue Reading »

Caring for the Carers

By on 4 May 2016 in General
Caring for the Carers

For most long-term health conditions, such as NEAD, the focus is on the person who is suffering as is only right. However, for each sufferer, there is at least one person who is also badly affected and that is their carer/s. If you are a carer for someone with NEAD, you may find yourself going […]

Continue Reading »

Be Kind to Yourself: Dealing with Down Days

By on 25 January 2016 in General
Be Kind to Yourself: Dealing with Down Days

Having a long term health condition like NEAD is tough. You can have days when you feel well and able to face whatever the day brings and other days where you don’t even want to get out of bed. On the bad days, always treat yourself with kindness. Keep talking Often, we may feel like […]

Continue Reading »

Mental Health Services and NEAD

By on 6 January 2016 in General
Mental Health Services and NEAD

The currently accepted best treatment for NEAD is cognitive behavioural therapy (CBT). However, accessing treatment can be a very hit and miss affair, depending on where you live. Funding has been cut to the bone for mental health services which means ridiculous things happening, such as one of our members being told that the therapist […]

Continue Reading »

Christmas and NEAD

By on 11 December 2015 in General
Christmas and NEAD

At this time of year, we are bombarded with adverts for the ‘perfect’ Christmas. Families are shown happily gathered at tables groaning with food. Children are always delighted with the gifts they have been given. Homes are decorated with style and taste. Of course, the reality is totally different; there are tears and tantrums, half […]

Continue Reading »

Top