Information about non epileptic seizures and Non Epileptic Attack Disorder.

Amanda Payne

Get Involved: Research into NEAD

By on 23 August 2017 in General
Get Involved: Research into NEAD

Research is so important as it leads to a better understanding of the condition and hopefully to better and more effective treatments. Ongoing research projects in which you may like to participate include one which assesses how different self-perceptions (self-compassion, gratitude, perfectionism) are related to how individuals with epilepsy and non-epileptic attack disorder cope with their […]

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Grounding Techniques (Updated)

By on 17 April 2017 in General
Grounding Techniques (Updated)

When a seizure is about to happen, you go into what is known as a dissociative state. You may feel as if you are detached from your surroundings or as if the room is moving around, or just get a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura’. […]

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Research Project From University of Sheffield

By on 29 March 2017 in News

We have been asked to take part in a new research project. Study title The Effects of Repetitive Thoughts and Feelings in People with Chronic Seizure Disorders Institution The University of Sheffield About the study The project aims to explore two main areas: 1.    People who suffer seizures often worry about these and have […]

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Preparing For Your Neurology Appointment

By on 13 October 2016 in General
Preparing For Your Neurology Appointment

One of our Facebook group members came up with a great checklist for getting the most out of your neurology appointment. Thanks Nicole! 1) Write a description of your attacks in advance with as much detail as possible about any auras, what goes on during them, what you experience and what happens post seizure and […]

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New Research Project Announced

By on 8 October 2016 in News

A new research project has been announced by Dr Christopher Graham of the University of Leeds into the possible connection between sleep problems and NEAD and FND. “This study investigates whether people with functional neurological disorders (FND), including those with dissociative seizures/non-epileptic attacks, experience particular problems with sleep. We also want to see if poor […]

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New FND Action Website Launched!

By on 10 September 2016 in News

Our new website for people diagnosed with functional neurological symptoms has been launched! FND Action is a newly formed UK based non-profit organisation whose aim is to raise awareness of functional neurological symptoms and provide a support network for those diagnosed and their families. The purpose of this website is to provide you and your […]

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Pregnancy and NEAD

By on 10 September 2016 in General
Pregnancy and NEAD

Deciding to have a baby is a key moment in any person’s life. When you have been diagnosed with NEAD, it is important that you prepare carefully to make sure that your pregnancy and delivery is as safe as possible. Ideally, discuss with your doctor what, if any, special preparations you need to make before […]

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The Misdiagnosis of Epilepsy and NEAD

By on 24 May 2016 in News

Journalism student, Abi Simpson knows exactly what it is like to have NEAD having been diagnosed with the condition in 2013. When asked to do an assignment for her University course, Abi jumped at the chance to research more into NEAD. You can read Abi’s resulting article here.

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Caring for the Carers

By on 4 May 2016 in General
Caring for the Carers

For most long-term health conditions, such as NEAD, the focus is on the person who is suffering as is only right. However, for each sufferer, there is at least one person who is also badly affected and that is their carer/s. If you are a carer for someone with NEAD, you may find yourself going […]

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Support in Scunthorpe

By on 10 March 2016 in News

Epilepsy Action holds a monthly coffee morning in Scunthorpe at which people with NEAD are very welcome. The details are as follows: Day: First Tuesday of the month Time: 11 am to 12:30 pm Place: Cafe Indiependent, 169-173 High Street, Scunthorpe DN15 6EH

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