Information about non epileptic seizures and Non Epileptic Attack Disorder.

Amanda

Clare’s Story

By on 24 March 2015 in Stories

I was diagnosed in Feb 2014 with Somitisation Disorder and Non Epileptic Attack Disorder. This became apparent when I started with severe lock down symptoms where my neck would spasm and my whole body would stop working and the ultimate attack was in August 2013 when I had such a bad attack, I lost the use […]

Continue Reading »

Grounding Techniques

By on 20 March 2015 in General
Grounding Techniques

When a seizure is about to happen, you go into what is known as a dissociative state which is why you may feel as if you are detached from your surroundings or as if the room is moving around, a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura. […]

Continue Reading »

Mindfulness (and how it may help)

By on 20 March 2015 in General
Mindfulness (and how it may help)

Mindfulness is defined as “the intentional, accepting and non-judgemental focus of one’s attention on the emotions, thoughts and sensations occurring in the present moment” and is based on elements of Buddhist practice. It is a way of really thinking about and focusing on your feelings and emotions without judgement or trying to change them in […]

Continue Reading »

The CODES Trial

By on 20 March 2015 in News

A trial funded by the National Institute of Health Research is underway to test whether cognitive beahvioural therapy (CBT) helps patients with non epileptic seizures. The trial is particularly focusing on the difference in outcomes between those who receive CBT in addition to standardised medical care and those who just receive the standardised medical care. Previous […]

Continue Reading »

Jayne’s Story

By on 17 March 2015 in Stories

Basically, for 16 months my son kept passing out and having what I thought were epileptic seizures. An EEG ruled out epilepsy. We struggled for such a long time; we couldn’t leave him on his own as we were so scared of when the next one would be. I managed to video one of the […]

Continue Reading »

Richard’s Story

By on 17 March 2015 in Stories

I was first diagnosed with epilepsy thirty years ago, although it is now believed I have had this condition most of my life. I am now seventy. There have always been times when I went into a dream world, or had blank spots when I missed information. Life was full of misunderstandings. School was difficult, but […]

Continue Reading »

Melanie’s Story

By on 17 March 2015 in Stories

I am 43. I got told in November 2014 that I had NEAD. I was told I had epilepsy 20 years ago. I was put on lamatragine,which they kept upping until I was taking 400 grams a day. Then in July 2015, they decided to do an EEG and it came back as no electrical seizures. They […]

Continue Reading »

Top